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Sunday, December 22, 2024

Beandri Booysen, the ‘influencer’ who made her fight against progeria visible, dies at 19

A few days ago, the tragic news of the death of Paula Cisneros, the young woman influencer 16 years old who, from his profile I can do everythinggave visibility to down syndrome. Now, the world of social networks has returned to mourning after the loss of another of its greatest exponents, Beandri Booysen, who has died at 19 years old.

It was her mother, Bea Booysen, who confirmed the young woman’s death on December 18. “It is with deep sadness that we announce the passing of Beandri Booysen, one of South Africa’s most beloved and inspiring young women”, the parent wrote in a statement through Beandri, our inspirationa Facebook page dedicated to titkoker.

Beandri rose to fame on the internet, in addition to “her vibrant personality and contagious laugh,” for giving visibility to her fight against Hutchinson-Gilford syndrome, also known as progeria, a rare disease that causes rapid and very premature aging in children.

Although she was not expected to live past 14 years, the content creator managed to become, like “sole survivor” of his genetic condition in South Africa, an inspiration for thousands of people around the world. “A voice and a symbol of conscience of progeria and other special needs,” read the statement from the Booysen family, which has requested privacy in these delicate moments.

Despite the challenges he faced in his daily life, Beandri, one of the 200 people diagnosed with this condition, never gave up. In fact, according to The Sunjust two months ago, the young tiktoker underwent open heart surgery hoping to enjoy Christmas with his family. Unfortunately, that wish was never fulfilled.

“I face everything that God brings into my life and I credit my family for my strength and support in raising me as a ‘normal’ girl and not as someone who should be seen as different from others,” recounted the influencer South African in an interview with the aforementioned British newspaper.



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